Have you ever been in a race that you knew you could not win?
Hedging my bets, calculating the probabilities, I would bow out, cut my losses, and throw in the towel. It wouldn’t be worth the effort.
When faced with a challenge, how many of us would opt for the easy way out?
I have the luxury to make those decisions for myself, because I have enough experience to know that I do have strengths, and I can succeed in other areas of my life. I don’t have to be good at everything. It is ok to have weaknesses.
What if life in general was the loosing race or an impossibly high mountain, with no easy way out?
The other day my son, Dylan, ran a race that he was sure he could never win. In fact, he was predicting that he would finish last. For Dylan, this race was no different from any other experience in his short life of thirteen years. Competition is not in his vocabulary, because he cannot compete. He cannot compete with peers his own age in verbal prowess, cognitive capability, social finesse, or physical ability. He will never be on an equal playing field, ever.
In his second year of life we were faced with the possibility that Dylan would never learn to speak or walk. Having a triple diagnosis of Neuroblastoma (cancer), Opsoclonus Myoclonus Syndrome (neurologic disorder), and ADHD (mental disorder) life seemed to have become an unclimbable mountain. Since the initial diagnosis, Dylan has had physical therapy, occupational therapy, speech therapy, vision therapy, behavioral therapy, psychological therapy, basically all the therapies in an attempt to try and bridge or lessen the gap between his disabilities and his typical peers’ abilities.
As Dylan so honestly responded to another child who asked him why he looked and sounded so different, my son simply replied, “because I had cancer as a baby.”
Dylan has figured out how to shut up the haters and has a knack of disarming and engaging people. All people. Everywhere we go. As a toddler, Dylan would walk into a restaurant waving at the people at each table we would pass. He would never let me speak for him or ask questions. He would put up his hand and reply, “I got this Mom.” To this day I get questions about my big brown eyed son from places that we frequent (Subway, the bank, Trader Joes) when he is not with me. “Where is your helper today?” they might ask. Reports from school consistently repeat the same message: “Dylan is hardworking, kind, considerate and helpful.”
Yet, Dylan’s interactions with typical peers has always made me a bit queazy and my heart achey. I want to wrap him in a bubble. Protect him from the realities of his disabilities and the harshness of life. The hairs on the back of my neck bristle when I hear comments behind his back or when he is left out and not included. Like a lot of families that have a child with special needs, we feel most comfortable with others that share the same path.
Quickly growing out of the general sports leagues in our community, we found programs serving and celebrating athletes with disabilities and special needs. These non competitive sports programs provide a safe and fun environment to learn a few skills and get a bit of exercise.
However, you can only keep them in their bubble wrapped world for so long. Before you know it, along comes Middle School… every child wants to fit in, have a place, and not be singled out. They just want to be like everyone else.
A PE teacher once told me that everyone can run. If you can walk, you can run. Even the most uncoordinated person, with practice, can run. When the school announced that the cross country team would be starting practice at the beginning of the school year, Dylan said that he would like to try. He along with two other boys from his special education class joined the team of over 100 middle school runners.
What if he could not keep up?
What if he got hurt?
What if he got lost?
I had to put my “what ifs” aside and focus on the possibilities.
Dylan started running twice a week, two miles, sometimes a bit more. He would be drenched in sweat complaining of his sore feet or numb legs but never asking to quit. His first cross country race was on home turf, which sounds like an advantage. However, the home track is the same one used by the high school teams and includes a notorious section aptly labeled “Agony Hill”, an ascent that challenges even the best runners.
My daughter and I stationed ourselves at a point on the track where we would be able to cheer him on about halfway through the race and then again at the finish. As the main group of runners passed by the halfway mark we waited…and waited…and waited. Finally we saw one of Dylan’s buddies from class round the corner and then Dylan behind him. They sped up as we cheered them on. The last runner, another lifelong friend with special needs, followed the pack at some distance. As we cheered wildly, one of the teacher’s, that regularly helped with the practices, jumped on her bike and rode behind for encouragement.
We could see Dylan and his two buddies as they approached Agony Hill in the distance, but instead of just three runners (and one biker) I noticed two more runners with them. The other runners were not in team uniforms, and I wondered where they came from. The main pack of runners came through the finish line and again we waited…and waited…and waited. One by one the slower runners finished. Finally, the first of the final three came into view. Running alongside him were a couple students in street clothes, apparently spectators that joined in the race. Dylan, following a bit behind, crossed the finish line in the company of a couple more rogue runners. The last of the final three had a crowd of about six runners (and one bike rider) that he had collected from the sidelines that joined him across the finish line.
Technically the race was “won” fifteen minutes before Dylan crossed the finish line, but the final three runners were champions that day. Maybe some of us are made to shine alone in the spotlight, and maybe some of us are made to bring others into the spotlight with them. Dylan will never be a competitive athlete, but his determination and grit is contagious.
One might look at the two miles of rugged cross country course and say, “No Way!” Yet, when we see someone who has every reason to not accomplish such a race, or one who was told that they would never be able to walk, out on the track doing the impossible, something changes within ourselves. We gain the confidence to try, to join, to encourage, and to hope. Dylan challenges me to be a better Mom and a better person everyday. It is by his example that I can step into situations that seem scary or challenges that seem impossible. Through Dylan I have learned that I don’t have to win to become a champion in life. I just have to enter the race.
Beautifully written, winner of the Complaint-Free-World Award! Sending love and so pleased by this encouragement, I salute you.
Absolutely beautiful!!!! I love Dylan and all of you so much! Thank you for sharing your soul!!!!!!
Thank you Rory This is so beautiful.
Thank you, Rory and Dylan! This is the inspiration I needed to get back into life and challenge myself. Thank you. 😀
Rory, you are such a beautiful writer and your posts are so encouraging. Thank you for sharing your heart with the world through your writing. You are an incredible mom!
Goosebumps!!! Fantastic accomplishment…So proud of Dylan! What a wonderful inspiration you all are. Beautiful writing from a beautiful Momma. Way to go, Team Hunter! Thank you for sharing.
Beautifully said, Rory! Thank you for sharing.
Thank you so much for sharing your story and your beautiful son.
And because of YOU I enter the race…I love you more than you know
Oh my!! That was so beautiful Rory. It gave me goosebumps!!It also inspired me to try to do more with my life. That race is just waiting around the corner!
Love you lots – Joanne/Nana
I cannot tell you how grateful I am for this beautiful piece you have written and shared. You are my Godwink.
Rory, that was so beautiful. Dylan inspires me weekly to become a better person/mom/friend/wife. His determination and hard working attitude are an inspiration for us all. I’m privileged to be able to see his growth in XC running and am proud of the champion he is! Thank you for this wonderful piece you have written. Makes my heart feel full!
Rory, this story is straight from the heart. I love it! I enjoy running with Dylan a few times a week. He gives he his high-five when we see each other. He never complains. He just asks “How far are we running today?”. I will say “Two miles, maybe three…” He says, “Okay…” Dylan is a hero and an inspiration to everyone. When we are out on the dusty hot course and Dylan is running, it seems that everyone tries a little harder. In essence, Dylan is a leader of positivity. He does not complain or bring negativity into the situation. He just runs and runs. When others see that they have nothing to complain about. Dylan may be running at the tail end of the group, but he is truly a leader and inspiration for all.
I can’t even find the right words to respond to your beautiful story. But I do know that I am the lucky one for having had Dylan in my class and he and this story continues to inspire me to do better and be better every single day. ❤️❤️
Dylan has always been an inspiration to everyone who knows him. I’m so glad to see him thriving in middle school as well as the strength and love you give to your children each and every day.
Thank you for speaking so eloquently for all of us special needs families. I love this line — “maybe some of us are made to bring others into the spotlight with them.” When there are hard days, this is what I try to remember, too. We love you, Hunters! And we love PVIS XC. What a great program.